For those of you who have CRPS can you please explain to me how the pain comes on. This is a new DX for my grandson and he has autism and can not talk to us. We can see that his arm swells up and changes colors and then he starts hitting himself, biting his arm, screaming, and then he stands on his head. The only thing that we can figure out is that when he puts pressure on his head it releaves the pain.

My question is how frequently does the pain come? How long does it last? His seems to be in spasms and after he stands on his head for a while it passes until the next episode. We have 1 - 10 episodes a day and the intinsity is severe. Any information you can give me will be greatly appreciated as he can not talk to us at all.