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Originally Posted by BigDaddy
I have had idiopathic full body neuropathy for more than a year now. Fortunately the pain is mostly under control with Cymbalta, Lyrica and 10 mg Oxycontin twice a day. When my neurologist ran out of ideas he suggested a teaching hospital nearby. So did my PCP. However, my wife, an RN, wanted mayo. It was a mistake. I was warned by my neurologist that the mayo clinics were "revenue motivated.". I found that to be true. The neurologists there do not know more than other neurologists as far as I can tell. They gave me a "diagnosis" that was a description of my pain symptoms and suggested treating the symptoms with the meds I was already taking. Go to some place like Hopkins, the Clevland clinic, or similar. I wish you luck and hope you find relief.
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Hi I did try Hopkins. I did not find out anything new. Same symptoms, suggested same meds I was already taking. Told me possible Sjogrens and sent me on my way. Told I could come back once a year to see if my antibodies tested positive. My neurologist can do that for me. I think I actually ran into one of those docotrs that if they can't fix you they don't want to be bothered with you. The nurse practicioner I saw in neurology at Hopkins was great, as was the GYN. I see doctors in the suburbs were I live. I think I'll stay with them. I really trust them but kept looking for an answer. It turned out that no one could give me any different answers from my docs here. Just a lot of guesses. hopeful