i was diagnosed in 2000 after a carpal tunnel test (emg). the doctor said quote you're not here to see me about this but do you hear how loud you're muscles are on the monitor ? i explained that i had never had the test and i would not know whether my muscles were loud or not. he said i am gonna write the term down and you may want to research it. he asked was i stiff alot , and my reply was yes and my brother complains with the same problem. he informed me that it was genetic and inherited and that if i had children i may want to read up on it. he stated it was not life theatening but could have some bad symptoms. i came home and read the case studies on the net and my whole world opened up. i finally had a reason for all my symptoms since i was in my early teens. i am 54 and suffer from stiffness in my joints and pain daily. it does not matter if i walk and play golf , work or sit still , i still am stiff and ache. i work in a hospital and have a rapport with many physicians and most are unaware of the term or the diagnosis. i finally have decided to seek help from a nerologist and try to determine if there are any safe and effective treatments.