Hello everyone who has concerns for patients with MG and who are currently undergoing the treatment,

I wanted to update my status so that there are more data points available for this rare disease.

Afteter my last post, I had to go to ER due to severe breathing difficulties. At the ER, the staff talked to our regular neurologist, and I was given IVIG for 5 days. The doctor also started Prednisone 60mg a day with 240mg mestinone.

This treatment worked like a magic. With the grace of God, Since August, I feel happier and better everyday. The neurologist (Dr George Spinka at KP, San Diego) has been very careful in reducing dosages. A gradual decrease of Prednisone dose is recommended. Also, we were told that taking Prednisone alternate day reduces the side effects.

Currently, I am taking 35mg Prednisone alternate days and 60 mg mestinone a day. In my last visit with the Neurologist, he drew a plan to reduce a dosage further. I am hopeful to come out of medication soon.

I hope that all of you with MG recover soon as well.

Thank you for your help and wish you thankful Thanksgiving holidays.

Happy_lady