Hi Lily,
I am sorry to hear you have joined our "club." I am glad your parents are supporting you as most families and friends just do not get it. I would recommend you seeing Dr. Philip Getson in NJ. Just google him and call him up. He is not far from Philly. You may be able to do a lidocaine infusion first before trying ketamine. I've had both and the ketamine is something to be taken very seriously if you want to go that route. I have seen both doctors and I feel Dr. S is great but I lost alot of respect for him and his staff this last year. There is not alot of individual care there as was years ago. I would try Dr. Getson and you should be able to get in within say 4-6 months or so. Better than Dr. S wait.

My trauma started in my foot too six years ago so I know your pain. Stinks not being able to walk. Unfortunately, my rsd liked me soooo much it spread to full body within four months and I've been blessed to have it since then. Changed my entire world but I try to cope with it each day. I pray alot and have a good laugh a day. Funny thing is you said you got cellulitis after foot surgery. My brother in law just had a knee replacement a month ago and got cellulitis too really bad and had to go back in the hospital.

I have tried every med, pain med, etc. and I have found that less opiods (and pain meds) is the best route for me. I also found they only take your pain down a small amount and I have gotten off fentanyl for good after six years. It takes a huge toll on your body and I have so many dental problems and have spent so much money on fixing them. So less is best I say...at least for me.

Try to be devastated for a bit and then move on. Never give up hope you will get better. It is a long road but there have been some that get better than they were. It is a journey as I call it. This is the best place to meet others going through the same thing. There are a few youngins in here that may relate to you being so young. There should be laws against young people and children getting this mess. If you have any questions please feel free to ask away...someone is always up here to help. This is a great group of rsd friends. Do remember that with rsd what works for one person may not work for others. It is strange but we are all so different. Try to keep moving your foot. I know I went through heck with trying to walk on my foot after 1 1/2 of not being able to get it on the groud. Gentle chiropractics and I've been getting iv's of natural vitamins and minerals every month now. I started a year ago with every two weeks and I am up to once a month now. Hang in there and we are here for you anytime.
kathy d