Boy, it seems like a lot of us have gone through hell just to get a diagnosis.

I still don't have a diagnosis (besides Fibromyalgia), but I've been experiencing all these strange Chiari symptoms for years. The neurologist refuses to send me for a brain MRI. He insists that my headaches are migraines (although the pain is in the back of my head not the side) and that the neck spasms are spasmodic torticollis. I asked him about Chiari malformation. He said that he's only seen two cases of Chiari in his 30 years of practice, so it couldn't be that. I guess that he has X-ray vision!

I am very frustrated and scared but I won't back down until I found a doctor who will help me. No one should have to live with such pain.