My thougths are interesting! I have never heard of photon treatment. What exactly is it? I do know that children have a much better chance of getting rsd to go into remission than adults do. I also completely agree with you that pain mgmt centers (as well as most other doctors) in America only want to mask the problems and not treat the problem. I also believe most doctors (and people) do not believe how bad the pain is with rsd...they just want us to suck it up and deal with it because it can't be that bad! In the beginning of thinking maybe it is rsd they throw (as you said) all kinds of money and testing for rsd and most everything will come up normal as rsd is a diagnosis that must be ruled out from other things in order to arrive at the rsd diagnosis. The drug companies as well as the doctors are making lots of money on us rsd patients so why would they want to cure it when they can continue to milk us and the system for all it is worth. Insurance Companies from what I have dealt with will do anything that does not help you and won't let you try anything that will help you. And if you really feel it would help you you have to fight tooth and nail to get the treatment paid for by them. It is a sad thing that America thinks we are so technologically advanced but yet can't cure rsd, MS, the common cold, etc...it always amazes me. Sorry I am in a not great mood tonight and it may reflect how I feel right now.

I am glad your granddaughter is doing much better now. There should be laws on kids getting this disease as it is horrible for adults and kids should never be able to get it.
Take care,
kathy d