Hi Claire,
First, congratulations on the success of the treatment and thank you for sharing your success!

I would love to know how Michael is doing now - has he continued to improve, plateaued, or ? Does he get maintenance antibiotics or is he off now? Also - when he got worse before getting better, did the Dr. refer to that has Herx reactions?

I was diagnosed ALS in Jan 07 after 2 years of slow moving symptoms. I heard about the antibiotic treatment (especially with the ALS clinical trials of Rocephin antibiotic gearing up) and went to a Lymes Dr. I tested on the Igenix test positive for Lymes (was negative on Western Blot) and have been on IV antibiotics for a week. I do not recall a tick bite but did a great deal of hiking in the woods with ticks.

There was a patient in the Dr.'s office when I went who was sharing the success he has had from the treatment. I know it is not 100%, but I have heard other successes as well. It is great to hear Michaels story.