I've been lurking in the forums for a few years absorbing all the great info that's shared here. First, I owe a special thank you to everyone for sharing your stories!! I too have been struggling and squirming to find answers and others like me. I'm still dealing with an unknown aspect as to exactly what I have, and I have had many tests. I was recently told I may have a form of HSAN but nothings been exactly pin-pointed since I do not have any sensory loss.

I wrote a fairly detailed (but short lol) description for my profile so there's probably no need in posting it here too... So if you want to know my details maybe go there?! I'm just thinking whats easiest.

I really look forward to getting to know you guys and possibly finding others with similar symptoms who can help me understand and plan for the future.

Thanks!!