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Old 11-26-2011, 05:43 PM
GrannyJo4 GrannyJo4 is offline
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Join Date: Aug 2011
Posts: 35
10 yr Member
GrannyJo4 GrannyJo4 is offline
Junior Member
 
Join Date: Aug 2011
Posts: 35
10 yr Member
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Quote:
Originally Posted by alice md View Post
When I read you post about being able to swallow again, I didn't want to comment because I thought that maybe I am wrong and your doctor did help you get over your fear, so why should I ruin that?

But, to be honest with you, I didn't think he did. I think he is a very nice and caring physician that really wanted to help, but has a very superficial and limited understanding of the complexity of neurological diseases.

I agree with Tatia, that some of what you experience fits movement disorders. What is termed "movement disorders" is usually the result of a brain lesion that leads to loss of the normal control and co-ordination. Many times you can temporarily over-ride it by strong cues. For instance patients with Parkinson's disease who can hardly move, will run when they see fire.
Or patients with Tick disorders can "hold" them for a while, but then they will burst out.

There is a nice study that shows the use of guided imagination and various relaxation techniques leads to decreased tremor in patients with Parkinson's disease, probably again by stimulating other parts of the brain that over-ride the abnormality.

This is not "mind over matter", but a physiological response of the brain.
I think that possibly what you need is not a specialist, but a good general neurologist who has a good understanding of MS, MG and movement disorders. Someone who will see you as a full person and not an EMG result.
Thank you alice md for your words of wisdom. What you are saying makes sense to me. I'll keep you posted with the 2nd opinion on Dec. 22 with the neuromuscular specialist.
Is Movement Disorder a different disease than the M.G. or M.S.? or maybe because of one of them?
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