Welcome to NT!
I'm so sorry to hear what your sons are going through.
You've come to the right place to get support, understanding, and alot of valuable information.
Here's a couple of forums I know you'd benefit from:

Regarding the motor cortex stimulator - You'll get some good input from the Trigeminal Neuralgia forum:

http://neurotalk.psychcentral.com/fo...sprune=-1&f=26
Take special note of the 'Sticky' section clear at the top of the screen when you get there. You'll find some very valuable info on the stimulators


Also, the Occipital and other Cranial Neuralgia Forum would be good:
http://neurotalk.psychcentral.com/fo...prune=-1&f=105

My heart goes out to you as you reach out and seek information and support for your dear sons. I pray that you'll find the answers you are looking for.
Please holler if you need help finding your way around the forums. Everybody is caring and understanding of what you are going through.

Caring,
Rae