Thank you so much for your response of hope. I have been unwell so long and would love to get back to life. I have to admit I have had many surgeries and know this will be a painful recovery, but I would do it tomorrow if I could, I hope for a full recovery but would take anything i can get..lol! I will look on FB for the support group, I haven't been able to find one in my area. Do you have children and if so have they been tested? I have 2 boy's but only 1 is my biological child and I worry for him, since most research I have read say's this is hereditary. I had a cousin (my mom's twin sister) who was born with spinabifida and other condition's related to this and wonder if I should have my son tested, he is very active in baseball and plans to continue through college and hopefully pro's, he has a God given talent and if this could effect him also I want to get a jump on it. Again thanks for the encouragement!!

Pam