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Old 11-30-2011, 09:20 PM
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cyclelops cyclelops is offline
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Join Date: May 2007
Posts: 2,049
15 yr Member
cyclelops cyclelops is offline
Magnate
cyclelops's Avatar
 
Join Date: May 2007
Posts: 2,049
15 yr Member
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I have had IV steroids, and IVIG....IVIG is more tolerable, less side effects. I have also had oral steroid, low dose. My body catches up to a steroid dose very fast, and the benefits have been thus far minimal. That said, they don't know what is causing the neuropathy, despite an ANA of 1:1,280.

I would go for IVIG first, if insurance covers it.

I have a hole in my heart and palpitations several arrhythmias, with severe dysautonomia, and tolerated 3 years of IVIG. My kidneys didn't like it after a few years. I am off now. The headaches were too severe, near the end, usually requiring a trip to the ER, and lasting effects for 2 weeks....altho for years, it was fine!

I am similar in age to both of you.
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