We have to be our own best advocates, always informed and educated. I like my neuro and PCP but feel "It's my body and we work as a team", in the end no one now what and hos as much as really concerned and involved us. They get really busy and don't have all the answers.

Had a wheelchair repair guy here who in the end wasn't really helpful. In the end I ended up problem solving as It's me who can't walk and is so dependent on my chair and do know it and this life very intimately.