Stellatum - wow thanks that was a GREAT explanation!!! and suev, I really appreciate both of yalls replies!!! Only one more day until my appointment on wednesday and I'm NERVOUS...

I have one seriously bad fear, though my story and age dont' fit well with it - i have fasiculations, muscle wasting diffusely and mouth tongue involvement , and thats ALS.. i'm absolutely terrified.. but from what I can find online (aka dr google, which I know isn't a good idea for me to be searching online, but i'm a medical mystery to the dr's and the first doc mentioned it as a possibility , others have said they don't think it's likely, two clean emgs, which is strange)

But then I also have the double vision at night when tired, eyelid thing and just diffuse muscle weakness that started all at once.. they thought maybe cidp.. but 2nd emg discounted that and i have normal reflexes.. I then came across the triple furrowed tongue thing... which is my tongue exactly!! I can't find any other disorder besides MG musk that explains a triple furrowed tongue, I have had the fasiculations for over three years.. so that might not be related at all.. ugh.. I'm beyond nervous, but I can't tell yall how much I appreciate yalls time and replies.. I will be makimg sure they also consider an atypical MG presentation along with everything else too.. ya never know!!