Originally Posted by Kathysevans

Hello, I am new to this site, and it seems already, that I am in the right place. First, let me tell you that I hate rsd, and what it does to you and your family!!!
My husband was diagnosed after sustaining a work related injury. He had to have his right shoulder operated on and go through therapy, but he just wasn't getting any better, numerous blocks and injections later, the doctor said" I think you might have rsd" sure enough.

After 2years of on going blocks and surgeries my husband can't even climb a flight of stairs without needing his inhaler. For a relatively healthy 36 yo man, asthma is not the cause, but rather rsd has affected his lungs. I feel that it has attacked his heart or it is now. My husband used to climb trees and always be on the go, now my children and I have watched a man do a complete turn around.

Over the summer it reared it's ugly head, Sean was laid up in bed for 2 months couldn't move or get out of bed. We all would have "family slumber nights" so that the kids didn't get too worried or upset. Things started to seem as if they were getting better, but now we have new symptoms: numbness in one or more extremities, anxiety attacks, chest pain, difficulty breathing and constantly feeling sick.

I have tried to contact various doctors(pain mgmt) to no avail they either don't accept our insurance or don't know enough about rsd. The one doctor we went to wanted to re operate on his r shoulder and bicepital tendon,I said no my husband is no guinea pig. So now we are at a total loss, him not working and we have to hurry up and wait for disability.
I don't work for fear something may happen to him while I am at work, leaving our children in a very scary situation. My question is, I guess I could use all the help I can get, advice wanted. Sorry to be babbling, but I am super scared for my husband! I don't want to lose my best friend, and I don't want my children to lose their father either. So any help would be greatly appreciated. My best wishes to all!!! Kathy