One thing I didn't say before is that it took a GP, a rheumy, a cardiologist, an oncologist, two neuros and about 1.5 years for me to find the right neuro and get my dx. My symptoms were real - but vague - and I have a very thorough GP.

The point is I don't want you to get discouraged if things don't move rapidly. (And my first neuro referred me to an ALS clinic...which scared the xxxxx out of me! I responded by finding a new neuro of my choice!! And lucky for me, I got a really good one on the second go.)

Pls let us know how it goes...will be thinking of you.