suev- wow, It seems like I read about a lot of people that take a while to get a diagnosis.. the limbo time/unkown is not fun! The dr i'm seeing at UTSW tomorrow is at the ALS clinic, looks like she also specializes in other things like MG, and polyneuropathies.. So, I'm hoping that we can find an answer- ANY answer besides a motor neuron dz! I think/ I know i'll be a nervous wreck tomorrow before and during the appointment!
I have seen 3 neuros, a physiatrist, my GP and my GI/Internal med dr, and still am a medical mystery! Neurology is so subjective, so I can see why it takes multiple opionions and tests to find answers, and it makes it hard as a patient to have so many subjective exams too, I think!
I'll keep yall updated, and again thank you so very much for your replies, I REALLY appreciate your time!