There are different grading systems. The one I was referencing is the Greenspan scale which is used at Hopkins (where I had mine done) and many others (but obviously not all places). As long as it looks for infiltrates & inflammation and the findings correlate to your symptoms, which it did.

Yes, you should have a baseline eye exam (to include color blindness and field of vision checks) by an ophthalmologist before starting Plaquenil...and every six months after. The damage to the eyes from Plaquenil is extremely rare, but none the less important to be checked for regularly.

Plaquenil is not a quick fix. It can (and usually) takes up to 3-6 months before you notice any improvement.

So glad you're getting some answers. You may find other unusual symptoms have an answer now. There are many problems associated with Sjogren's. They may address your PN differently now with this diagnosis.