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Senior Member
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Join Date: Jan 2010
Location: Illinois
Posts: 1,785
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Senior Member
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
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Hello Kathy...I am sorry to hear what you and your husband are going through. RSD and the way it changes our lives can be SO overwhelming. I feel blessed to have found this forum with people that I can talk to who are supportive and helpful...and of course knowledgeable about life with RSD.
Finding a doctor is one of the hardest things with RSD...and most people on here have experienced the frustrations that you guys are going through in this respect. Best advice I can give you with this is keep looking until you find a doctor that you feel can help your husband to get some relief from the pain and all the other symptoms that come with RSD.
Also...I recommend being very proactive in researching RSD for yourself and educating yourselves. This is not an easy task...but it will help you to understand why some of these things are happening and what you can do about them. Also helps you so you can determine if a doctor is the right one for your husband because many claim to know about RSD but are seriously misinformed about it. Some good websites are rsdrx.com (the puzzle list may answer some of your questions) and rsds.org.
The stickied topics at the top of this forum have a lot of good information too.
Just some things that you may already know (but no doctor bothered to tell me in the beginning prior to the RSD diagnosis) are: no ice (ice is very bad for RSD) and keep moving (immobilizations will make the RSD much worse so even if it hurts to move you have to keep doing it). I also find that heat is helpful in soothing some of the pain so heating pads or warm baths with epsom salts are good.
If you have any more specific questions, please let us know. There are many people here who are very helpful and knowledgeable...who may even be able to suggest a doctor in your area that is good.
So sorry again to hear what you are going through. Please stay hopeful that things can/will get better. It sometimes is just a long painful journey before that happens. Good luck.
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