Understandably on here there's a lot of depressing stories about things that have gone wrong, so I thought I should document something that went really well, and came completely out of the blue, hopefully to give others some hope (I'm 8 months into PCS by the way).
Saw my neuropsychologist last Friday, was really down as I had cut almost everything out of my life that I used to enjoy in an attempt to get better - and it didn't seem to be working.
She suggested that for my own mental health I should try and do some of these things again, to 'push through' the symptoms a little and see if things go ok. This made me very wary as I did a fair bit of trying to 'push through' at the beginning and the results were not good. But she made a good point that I was adding to my stress which is bad for the brain so I gave it a go. It felt like things couldn't get much worse anyway.
That evening there was a work Christmas meal which I had been thinking I would most likely skip. I decided to go but was dismayed to find that it wasn't just a meal it was a whole posh 'do' at a hotel with loads of people, a loud disco and flashing disco lights all over, a PCS nightmare.
I hid in the corner making a little conversation and gradually realised that I was feeling ok. By the end of the night I was actually dancing, which was weird, I could hardly even remember how. Needed a few breaks, and it did make my head feel a bit fuzzy, but having decided to ignore such symptoms for once and see what happened I carried on. When I wasn't worrying about it so much it actually wasn't that unpleasant - it actually ended up being a bit like being drunk, but without having to buy any alcohol (I don't drink any more of course).
That was 5 days ago and I've suffered no ill-effects. I am amazed given how little hope I had that afternoon, but that by the evening I was doing things I never would have expected and having a great time. Shows how quickly things can turn around with PCS, even after long periods of no improvement.
Of course I will continue to be careful, I've been bitten by this thing too many times. But really hopeful.