Oh how I wish I had the answers! Because I have those same questions!! My parents don't get it AT ALL. They won't even talk about it or ask questions. They are rude or anything, they just avoid it. And my Mom makes me CRAZY! She'll want me to do 50 things & if I tell her I can't cause I'm tired or having a bad day, she always responds with something like "YOU'RE tired! I didn't sleep well last night!" She always diminishes my issues, whatever they are, to hers. Make me MAD. Only my immediate family even knows that I have MG at the moment, not even my extended family. Wondering if I should tell them since we really only see each other twice a year, though we used to all be very close.

I, too, often want to give a truthful response to "how are you today?" I generally chuckle, as I find it amusing...if they only knew, and respond that "I am very well, and how are you?" My own little inside joke I guess.