Quote:
Originally Posted by mnp2011
Quick update on water cooling after flare-up. I did my standard 30 minutes on a cross trainer then put my feet in luke-warm water (just below body temperature) for 15-20 mins. This had no significant affect on the flare-up disappearing, it was more or less the same as putting feet up and waiting 10-20 mins for it to calm down again.
Not sure how useful this would be for a diagnosis, but I'll report it to the specialist when I next see him after this bone scan next week.
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Just thought I'd post an update on my progress. I got all my blood tests and bone scan back and they didn't show any bone infection of any kind. So my pain specialist now tells me it looks like a sub-form of CRPS in both my toes.
I've since had an intravenous sympathetic lumbar block on my right leg (tourniquet of the lower leg and injected anaesthetic and sympathetic nerve block liquid) into a vein in my foot. This was 7 days ago and when I go on a cross trainer for 30 mins, both my feet seem to swell up and go red exactly the same i.e. the block doesn't seem to have had any beneficial symptom easing effects.
From this I understand it is SIP or sympathetically independent pain - meaning from what I gather as confused brain signals to the feet, rather than local damage in my feet?
I'm due to see a different pain specialist, specifically in CRPS next week, but just wondering what the thoughts were here too? If it is a SIP form of CRPS are there any recommendations on what I could do now? Is it a case of re-training my brain for the correct signals? - if so how?!
The docs are running out of ideas now, but my guess is probably a dose of pregabalin that was talked about before.
Any thoughts much appreciated
