View Single Post
Old 12-09-2011, 07:13 PM
Westgrl Westgrl is offline
Junior Member
 
Join Date: Oct 2011
Posts: 27
10 yr Member
Westgrl Westgrl is offline
Junior Member
 
Join Date: Oct 2011
Posts: 27
10 yr Member
Default

Quote:
Originally Posted by NeuroLogic View Post
I'm looking for a competent neurologist who isn't just interested in a paycheck in the nearest city. I'm reading the ratings.

The first person in Google gets 3/5 stars. The first reviewer said she had to wait 8 months for the appointment, which lasted 10 minutes. Turns out he was a loser, arrogant, and useless.

In the summer I called to get an appointment with a family physician (prereq to see a spec like a neuro in ON, Canada). The waiting list was three months, and the secretary didn't know if the doctor was seeing new patients.

So I could wait a year to get 10 mins with a useless neurologist.

Un-believable!

I can't believe how much I've paid in taxes and how little I get for it.

I've already given up on the local naturopath who was only trying to sell me different tests and products.

I found a "doctor" who is a chiro but also trained in neuro. However, his tests seem limited, and he may be casting a wide net just to sell his chiro/other services.
I'm quickly learning that the ratings don't always mean much. Maybe if you had a stroke or something they know something about. However, I hear stories about neuro docs who are supposed to be the absolute best in their cities ignoring B12. I can search for MS specialists, etc but you can't even search for a neuro who is experienced with B12. My copay is $40 for a specialist & as you mentioned, each appointment is a wait just to pay their fee & find out they are ignorant to B12. Over the years I have been to a couple different ENT & a couple different GI docs for various symptoms & none of them ever picked it up. I googled my symptoms, saw B12, requested to be tested & basically diagnosed myself. I would probably still be undiagnosed & on my way to being diagnosed with MS right now.

If it was just the tingling, vibrations, etc I would just take B12 & hope within a year or so it would improve. But the back pain is so bad and part of me is worried that it could be something else. I could have a stress fracture, a bulging disc, or permanent damage from the B12 that I may require medication for. So I never object to the MRIs but now that they are venturing into MS diagnosis, I am getting worried & know that I will have to go looking for someone else. I feel lucky to have a family Dr who understands, at least, that this does have to be treated.

I read the book "Could it be B12? An epidemic of misdiagnosis" I highly recommend it! But even that book doesn't really tell you how to find a doc that knows about B12. Just tells you what to look for & move on if you aren't taken seriously. Refer the Dr to the chapter for physicians & educate yourself so you know what to ask for. It's just so draining having to fight to get a doc to listen to you, most of them will never admit they don't know something or that you may know more than they do. I'd love to just walk into an office & have them be able to do what they are supposed to & treat me correctly.
Westgrl is offline   Reply With QuoteReply With Quote