Member
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Join Date: Nov 2011
Posts: 576
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Member
Join Date: Nov 2011
Posts: 576
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Thanks Suev! I have a great guy here that I really like, My other dr's had wanted me to see him since getting in with the university here was going to take a while, but they ended up moving thigns ahead so it didn't. We may end up having a trip to MAYO in our future.. I just hoped we could get an answer here, or in Houston since we'll be down there in a few weeks.
On another note- Does yall's face get fatigued after smiling?? If I laugh or smile, it's like my face tuckers out and I just can't do it anymore for a while.. ALL of my muscles are this way, but my face especially! I am also now noticing my slurred speech is defintely normal in the morning but progresses as the day goes on or if i talk a lot, and then if i rest it gets worse.. hummm.. So i researched the whole MusK aspect some more- it looks like patients can actually have muscle atrophy with it, along with the furrowed tongue and tongue atrophy.. huh!? I have vibration, temperature and proprioception loss in all limbs, but I am starting to wonder if that is separate - maybe just from post partum, malnutrition issues.. For those of you who had positive bloodwork, especially Musk, do yall know where they sent your bloodwork? To mayo, or can a lab like quest do it?
I think I am going to call my neuro here and have them go ahead and just run the Musk.. what can it hurt!
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