Hi Kathy......It's very nice to meet you, but sorry it has to be here.

Just want to add my support to all the rest. Did you have the spinal? I never did have one, just MRI's, and was diagnosed at 47 but am sure it was around long before that. Now at 68, I've used a powerchair for six years and deal with a lot of chronic pain. Like Sally, I take LDN and feel it slowed progression quite a bit.
All the best to you in your journey with this miserable disease. Hope to get to know you better!