Quote:
Originally Posted by dmplaura
I'm the same with Clonazepam.. I tried to cut back to .5mg daily (I'm at .75mg daily now) and the burning came back full force.
Yesterday the pain was through the roof, honestly. Think I 'overdid' it and caused a flare up.
I find that Stride peppermint gum (their b12+b6 gum as well, "Kinetic Mint") eases my BMS tremendously.
I tried to 'pin' the BMS on something for years that triggered it (medications, dental work, allergies, etc) and can't find ANY cause, save for what neuros have told me: Brain stem lesion. Seeing as how I suffer from Trigeminal Neuralgia as well, affecting the nerves into the head/face, it certainly makes sense that MS caused 'wiring' damage, thus the BMS.
I had my vitamin etc levels fully checked, checked for every A/I disease possible, various other blood work/investigation. All came out 'healthy', save for the MS.
Such a frustrating condition to 'guess' it's the MS.. but then again, doctors and neurologists play the 'guessing game' with the McDonald's criteria daily to diagnose MS. So much uncertainty with this disease.
Thank you Sally you're awesome!  |
I have MS and burning mouth syndrome. I have had burning mouth since 2008. Some days are worse than other's. It starts to take over your life, I am on Rebif for MS. Some day's it is like my whole body is on fire and is going to ignite. I have found that if I eat foods with hydronation , mostly the partially hydrogenated soy or cottonseed oils make it worse. I had upper dental implants put in in 2008 then started to get burning mouth . The doctors do not know how to treat it. I do not do well on clonazepam or klonopin, neourtin. I have to take temazepam to sleep. I rinse my mouth with benadril liquid with some relief. This is a dreadful syndrome and I wish they knew more about it. I have read some people have had it for 20 years. It is nice to have a place where other people can understand. Thank you