Hi Sarah,

I just read your post ** and my heart tightened at the despair you are feeling.

My GP was able to refer me to a particular neurologist privately and the neurologist slotted me back into NHS for tests etc due to the cost and the fact that I was self funding.
Since Dr.Casey has said he will see you on the NHS, can your GP refer you to him? Have you asked your GP to contact him? I don't see why it should be another consultant who has to refer you.

Try to find out the name of the doctor who acted unprofessionally and cruelly when he came to your bedside while you were in hospital and MAKE A FORMAL COMPLAINT about him. Also document your treatment / lack of treatment so far and put this in writing to yout local NHS complaints. Let them know how this has affected you and your family both physically and mentally... and LAY IT ON THICK! My GP told me to exagerate EVERYTHING I told the specialists or I would end up at the bottom of the pile or be dismissed.

I know you are totally depleted but it may help you get the assistance you need.

I'm still no further forward with my recovery and I know how hard it is to keep fighting but even note down a few points every day, keep a diary etc and then get a friend to document it for you. I know I tend to give up or treat the pain as 'normal' now but friends can reassure you that it's far from normal and that you deserve better. Can you get someone to take the lead in your fight to give you a rest from it?

I'm asking about neuroradiologists in my next push, if I get any good advice I will let you know straight away.

Thinking of you