i am so sorry to hear about your daughter. i got rsd when i was 11. i am now 18. i had an SCS implanted august of 2010.mine is now off, and is stuck inside my body. i would be very very learly of the SCS. yes it works for some, but your daughter is so young to live with a foreign object inside of her. have you looked into Children's Hospital in Boston? or the Cleveland clinic?