thank you so much mark! it is great it be on here again it's been awhile. yes i am only 18. me and my parents can not believe we went along with the surgery, for years we had been against the SCS. but i guess when you have " a rsd expert" telling you it will help. you start to believe him. i only have one device. i have RSD in all four limbs and my back, and now in my stomach where i had the baclofen pump put it. oh the live of us RSDer's. Thank you again i will wait to see if anybody else has any input.
does you stim work now? do you have medtronics or boston scientific?
yes i would explain it to my doctor like you were getting shocked! put your finger in a socket that's how it felt. and he every time would tell me " there is no way it is that bad" if only they could live in our shoes for 5 minutes, even 5 seconds!
you all are in my prayers!