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Old 12-14-2011, 11:53 AM
better12 better12 is offline
Junior Member
 
Join Date: Dec 2011
Posts: 18
10 yr Member
better12 better12 is offline
Junior Member
 
Join Date: Dec 2011
Posts: 18
10 yr Member
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Hello MrsD

Again, impressed and appreciative of your knowledge, particularly details!

Keep in mind, I lost this large amount of weight in 2002! Yes, diet was extremely low fat and the first subtle neuro symptoms started near the end of this diet, but not troublesome until several years later, is this possible to present in this 'delayed' fashion if the diet was a causal factor? If so, I have to wonder if any deficiencies, absorption deficits etc played into this?

Excellent points in distinguishing numbness vs. tingling and you're correct! I can remember at times in life when a body part would 'go asleep' from compression. Sure enough, the first reaction would be numbess and then tingling and thankfully it would subside, unlike what we're talking about today!

Tried gluten free for 8 months in 2008, unfortunately I don't think it helped.

Have noted your comments about Spectracell, any idea what people self-pay for testing at that lab?

Interesting comments about my B12 level and the possible for nerve problems Neuros never thought it a problem, I tend lean toward your reference. One thing I also wonder, my 500ish reading may not have always been THAT high? Really need to aim for 1000 and get the D3 up as well.

Trying Kefir is easy enough, will do as well as suggested doses of Alpha Lipoic, etc. As stated, tried some of these before, but didn't continue. Hoping it's not too late to improve things?

Excellent points about the glucose testing. My relatives would be more than happy to help.

IMPORTANT: forgot to add something earlier! Back in early 2005 when I really started with the tingle/burn/zaps, I immediateley thought 'diabetes'. At the time I bought a bottle of keto-diastix? Familiar? Anyway, I NEVER reacted on the glucose portion of strip, but numerous times I would show 'ketones' in my urine. Again, back in '05. Could this be a clue to anything?

My blood testing for fasting levels of below 100 were all between 2007-2010,well after the 'ketone' readings in 2005

For what it's worth, I have the near inability to sleep for more than 2.5 hours straight IF I do not consume fairly large amounts of carbohydrates/calories? What could this indicate metabolically? I've have this tendency well BEFORE any nerve problems in 2005.

I know I've given alot of info and much of it seemingly disjointed. Besides my nerve pain/sleep issues/right ear tinnitus, actually feel OK. But there's probably NO irony in the fact that all my health problems/symptoms seems to relate to the nervous system and nothing else.

Question is 1 of 2 things? Can I find/improve the cause and/or what meds can cover the symptoms to live a better quality of life? Certainly many here grapple with the same questions? Again, I'm just dealing with sensory dysfunction for which I suppose I should be thankful

Thanks again MrsD for your unselfish sharing of info/knowledge! Perhaps if I followthrough long-term with some of what you're covering, something might help symptomically?

Kindest Regards,

JB
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