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Old 12-14-2011, 09:18 PM
Geode Geode is offline
Junior Member
 
Join Date: Feb 2011
Posts: 91
10 yr Member
Geode Geode is offline
Junior Member
 
Join Date: Feb 2011
Posts: 91
10 yr Member
Default Tensilon test - inappropriate to ask?

My antibody tests (including MUSK) and EMG's have been negative. The last thing Dr. S wants to try is a muscle biopsy to investigate Tarui disease. I think that's a longshot since my glucose is never low, and has often been just a little bit high.

How inappropriate would it be to ask for a Tensilon test, just to be sure, before doing something as invasive as a muscle biopsy? Is it a very expensive thing? Should I ask about a Mestinon trial instead? Should I keep my mouth shut?
I don't want to offend the doctor and lose his help.

Tatia
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