Junior Member
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Join Date: Feb 2011
Posts: 91
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Junior Member
Join Date: Feb 2011
Posts: 91
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Tensilon test - inappropriate to ask?
My antibody tests (including MUSK) and EMG's have been negative. The last thing Dr. S wants to try is a muscle biopsy to investigate Tarui disease. I think that's a longshot since my glucose is never low, and has often been just a little bit high.
How inappropriate would it be to ask for a Tensilon test, just to be sure, before doing something as invasive as a muscle biopsy? Is it a very expensive thing? Should I ask about a Mestinon trial instead? Should I keep my mouth shut?
I don't want to offend the doctor and lose his help.
Tatia
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