Quote:
Originally Posted by JulieRN
Crystal,
I completely understand your thoughts and feelings, as I feel the very same way!!! Are you a Nurse by chance?? I've been out of work (again) since July and no one bothers with me. At. All. Not one staff member has reached out to ask how I am doing...yes, it hurts. Alot. But I have decided to not to let that get to me..it took time.
See, because it's our brain...it's not something obvious like a broken arm/leg etc...there is a prejudice...(this was validated by my Neuropsych). People think that we are "faking" or "playing up" the symptoms for compensation. I would gladly give my symptoms to one of the "fakers" and let them see what it's REALLY like to live day to day with this injury.
People can't show compassion for what they don't understand. Yes, it's ignorant and wrong. You feel like you're being kicked while you're already down.
I wish I had more for you, but just know that I understand your feelings and I'm sorry that you are in "that place"...I spent my entire Summer "there" and fear everyday that I'll go back...I have dark moments, but I'm now in the cycle of plain exhaustion...I'll take this over the anger and darkness...
I do hope each day is a better one for you...  |
Hi Julie,
Im not a nurse. Im an MA for a cardiac practice. Since we're so close I was wondering who your seeing for MD's. Any of them specialize in PCS? I am going to the Head Injury clinic at H.H. and seeing Dr. Silverman at Hartford Neurology.
I think once this holiday is over I can get back to a better place. I'm not sure. Tonight I'm supposed to go to my Nephew's orchastra concert for three hours. There is no way I'll be able to do it after the week Im having. So I'll frustrate my family......again.
You say you live on the river side in Middletown. When I was growing up in Cromwell I would sit down on river road and watch the water. It used to be my go to place when I was feeling real bad. Maybe it's time I go back and visit my spot. It may bring me some clarity to my fuzzy confused mind.