hello Kitty

You may want to consider a pediatrics website with support groups/forums as our children's topics are not very active here.

I am sorry your child is suffering

Do remember that just because there are no answers here, does not mean people do not care. It is that most do not visit this Children's Health forum often, if at all, and those who do, may just feel overwhelmed by the enormity of what you describe and just simply not have any information to share. As you know, these forums are generally for patients to offer support and share information, not for professional medical assistance. That is something you need to consult your child's physicians about

I do hope you find a place that may have parents who can support you and provide information.