I had my first seizure just after the 6th grade or when I was 12, that was in 1971. Since then I've had several different revisions the last one being just over a month ago. I can say this I always have felt exactly like your daughter and I'm now 53 years old. By rhe way I have to go back in next week because the Medtronics programmable vp shunt is not working. I've had six and all of them failed too. The next shunt is going to be a fixed pressure shunt like the one I had for 34 years until 2002 and then changed with great regret. A neurosurgeon a UCSF told me that the only reason doctors put programmable shunts in is to keep you coming back. God Bless you and your daughter and the best of luck to her too.....