Thread: Cidp
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Old 12-17-2011, 07:08 PM
better12 better12 is offline
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Join Date: Dec 2011
Posts: 18
10 yr Member
better12 better12 is offline
Junior Member
 
Join Date: Dec 2011
Posts: 18
10 yr Member
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Hello Hermes:

Encouraging that your enjoyed some relief, despite the side effects mentioned.

For how long have you been dx'd with idiopathic polyneuropathy? Where and what are you symptoms like?

Take Care,

JB

Quote:
Originally Posted by Hermes View Post
Hi everyone,

My Dx has changed from idiopathic polyneuropathy to CIDP based on a lumbar puncture and how I reacted to oral corticosteroids. My neuro put me on 60mg for 4 days and then 40mg for 4 days and then 20mg for 4 days and finally 10mg for 4 days. It worked great at the high dose. We are trying 1000mg of SOLUMEDROL IV once a month for a 6 month trail. Side effects are high blood pressure (my cardio started me on BP meds a couple weeks ago) and a high pulse. I also find that my heart seems to race and I get out of breath easily.

Pain doesn't seem to be a whole lot less but I'm not sure how long before I should show improvement. I had the treatment 11 Nov and 9 Dec. Next one will be mid Jan.

Has anyone here been through this or know about the side effects and how long this should take?

Thanks,
Hermes
"I've always lived with the philosophy that pain hurts!"
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