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Old 12-17-2011, 09:25 PM
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Join Date: Aug 2010
Location: South Carolina
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pingpongman pingpongman is offline
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Join Date: Aug 2010
Location: South Carolina
Posts: 714
10 yr Member
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In my case it usually takes 2 series (5 TREATMENTS) of IVIG for me to see improvement. I think I'm at about 14 months of being dx'ed. I get IVIG about every 2 months. I am currently on Cellcept, Mestinon and Steroids. I had a year treatment with Imuran but it just made me real sick. Mestinon is good for 3-4 hours but it does help my droopy eye. Keep in mind that what works for one person may not work for another. My sister has the "saggy face" but so far is stubborn and won't seek treatment. Oh my IVIG comes without meds and only had a couple of minor headaches. A treatment takes about 2 hours and 15 minutes, so they give me a pretty fast rate.

Hang in there with your Neuro I'm sure he figure out what works for you. Hope you feel better soon.
Mike
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