View Single Post
Old 12-19-2011, 10:20 AM
teresakoch's Avatar
teresakoch teresakoch is offline
Member
 
Join Date: May 2010
Location: Fort Worth, Texas
Posts: 199
10 yr Member
teresakoch teresakoch is offline
Member
teresakoch's Avatar
 
Join Date: May 2010
Location: Fort Worth, Texas
Posts: 199
10 yr Member
Default

One note about the GF/Celiac stuff - the tests for Celiac will only pick up Stage III or higher damage, so you could very well have Celiac and it won't "show up". There is currently no test for Gluten Sensitivity, but the symptoms (and effects of continuing to eat gluten) are the same.

The fact that your Vitamin D levels are so low certainly would seem to indicate something going on there. If you go COMPLETELY GF, you should see an improvement within a few months. And you have to stay GF for life.

You will want to give serious consideration to implementing a GF diet for your entire household; while many problems caused by undiagnosed CD can be reversed once a GF diet is started, many others ARE NOT REVERSIBLE (MG, for example).

That's not to say that MG is CAUSED by untreated CD, because the two are entirely separate conditions, and many people with MG do not have CD.

However, if a person is gluten sensitive and doesn't know it, their immune system will go for many years without working at peak capacity.

I'm so glad that you finally have an answer for what's been "ailing" you for so long; it's going to be challenging with young children around the house, but it is manageable. Don't be afraid to ask for help, and don't overexert yourself - you could find yourself in the hospital again (or worse).

There are many medications that are absolutely contraindicated with MG - be sure that your doctors are aware of these (your dentist, too). You may want to get a MedicAlert bracelet as well, just in case.

The folks on this forum are the absolute best - they're always here to answer any questions you may have, or to put an arm around your shoulder on the days when you need to have a "pity party" ('cuz really, people who don't have this disease don't understand how we FEEL most of the time).
teresakoch is offline   Reply With QuoteReply With Quote