Thanks Teresa!!! I appreciate it!
Yea, i have been gluten free now for about 5 months I think... The bowel issues (what I think preceeded the rest of this mess) have improved some, but not back to "normal" for me.. I have dedicated pans etc that I use in the kitchen to avoid any cross contamination, and my kids and hubby eat mostly gluten free now too! I have two familiy members (aunt and cousin) that are possibly celiac too.. so I will just stay on this diet (though around Christmas I'd really like to indulge in my traditional cookies) until I start improving GI and Neuro wise, and then may test the waters someday, but for now not worth the risk!

As far as the IVIG goes, I felt like I was feeling a little better yesterday, but then the side effects of the IVIG seemed to kind of take over- flu like symptoms, pretty bad headache etc, been taking tylenol and motrin but temp is still getting up to 100, so i just kind of feel all over weak again.. though I think improved, but my right eyelid is droopy again, though not as bad.. humm... Wish I had a few more answers! I will be here in the hospital at least another night- LP done today, EEG/evoked potentials tomorrow.. Hopefully the body aches and IVIG side effects will wear off and hopefully the benefits will start really showing up!