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Old 12-20-2011, 10:29 AM
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jana jana is offline
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Join Date: Apr 2009
Location: Tenn
Posts: 554
15 yr Member
jana jana is offline
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jana's Avatar
 
Join Date: Apr 2009
Location: Tenn
Posts: 554
15 yr Member
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I had what appeared to be aseptic meningitis after my second day of IVIG. I say "appeared" because they did NOT do a lumbar puncture. They ran my infusion slowly both days -- and I drank a LOT before, during, and after (more than any other patient the infusion nurse had ever seen).

I had a SEVERE headache, chills, aches -- ended up in the ER where they ran a CT and gave me IV pain killers. I had a headache (on and off) and a rash for about 6 weeks. The IVIG sent me into a 3 month MG exacerbation.

I have always suffered from migraines. I later learned that people with migraines are at greater risk for aseptic meningitis AND if you get it once, you'll probably get it again (if you have migraines). Here is the article I found:

http://www.annals.org/content/121/4/259.full.pdf

I'm so sorry this happened to you. IVIG works MIRACLES for so many MGers.
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