I tested negative for the antibodies three times (and once for MuSK). My first two SFEMGs were border-line. After that my neurologist sent me to another neurologist who gave me a third SFEMG and thought it was conclusive. The whole process took 15 months (but it took a few months to get that first appointment with the neurologist).

I think my diagnosis was delayed because my symptoms are atypical. No ptosis, no vision trouble. My first symptom was balance trouble, which it took me months to understand was caused by weak muscles in my sides.

Abby