Quote:
Originally Posted by scrubbs
I've gone from 21/2 hrs. to 4 hrs. on my infusuin time and it made a big differance on how I felt after. One of the paitients I see at the ifusion center is on the tube for 6 hrs. Doctors orders.
You may want to see if slowing down the infusion rate may help your daughter.
Tony
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Tony, Caitlin's infusions are taking about 3 to 3.5 hours. They slowly increase the infusion rate three times during the session. They tell me it is a conservative approach.
She hasn't been drinking enough water and today the nurse insisted that she have 8 glasses during the day. She doesn't like drinking all that water, but I hope she'll feel better this afternoon.