When I got home from Mayo clinic, it wasn't long before the side with the MVD and two craniotomys started to teach me all about burning. We called my neurologist but were not even able to get any straight answers. No one had talked to me about A.D.
It's been about eight yrs. now and the burning turned into a hell on my face.That side "L" became totally numb BUT with a grabbing, burning, severe
pain 24/7. I take about 20 pills a day even now, with neurontin that is 3600mg.per day. The nerves move around constantly and when they get behind my eye it really hurts.
This is my truth, none of us are alike when dealing with this disease.
Bless, Doodle bug7