View Single Post
Old 12-22-2011, 12:39 PM
Geode Geode is offline
Junior Member
 
Join Date: Feb 2011
Posts: 91
10 yr Member
Geode Geode is offline
Junior Member
 
Join Date: Feb 2011
Posts: 91
10 yr Member
Default Nih

Have you researched mast cell disorders? I only mention it because I know it can cause rashes, severe GI symptoms, and dysautonomia. I don't know much about it, what else it can cause, but there is a forum if you wanted to ask questions there. Some people are "leakers" (chronic milder symptoms) and others are "dumpers" (sudden onset of more severe symptoms.) http://mastcelldisorders.wallack.us/yabb/YaBB.p

More importantly, have you considered applying to the NIH Undiagnosed Diseases program? You have so many different things going on, with several positive test results, I think you might make a good candidate.

http://rarediseases.info.nih.gov/Und...eases/FAQ.aspx

Tatia
Geode is offline   Reply With QuoteReply With Quote