Welcome to neuro talk. I am just a member with neuro issues in my neck. I read your post. I am sorry you are going through so much. I don't think what mayo clinic said to you was particullarly nice. Just because others have it, doesn't make your case less painful to endure. I was wondering if it was RSD that you have as Jo mar did. That forum is really good for this disorder. Do not be satisfied if your quality of life is that bad. There has to be other options for you, through another doctor. You can get your records from Mayo clinic and go forward. They are not the end all of help. I went there too years ago, and was not very fond of what they told me eithor. There was help for me besides what they said. Perhaps there is someone in this forum that can lead you to another specialist in the state you live in. Do not give up on life. Your pain can be better controlled. Seek a pain specialist. That is what I wound up doing, and he gave me back a quality of life. I can feel how sad you are, and I sure wish there was something I myself could do to make your situation better. There are lots of good souls on this site who will support you no matter what you have to go through. I hope alot of people will respond to you with good suggestions. ginnie