I'm struggling with this issue myself. I've known for many years that my brain anatomy is unusual, and last year I had headaches and was diagnosed with triventricular hydrocephalus from aqueductal stenosis. To make matters worse, or at least ironic, I'm a practicing neurosurgery PA for the past 11 years. I've seen a specialist who utilizes endoscopic third ventriculostomy surgery, which is much better than a shunt and avoids most of the complications of implanted hardware. It is considered ideal for my condition, because there is evidence that my body can absorb CSF, if only my large ventricles are allowed to drain to the arachnoid granulations at the top of the head. My wife, who is a Family Practice MD, and incidentally, or not, has been separated from me for just of 6 months, thinks that it "causes" my so-called anger problem. I had about 5 episodes of urinary spasm resulting in frank incontinence over the past year and a half, which had prompted my neurosurgical advice. I've been feeling better for the last few months, and I'm kinda blowing off those signs(if they are connected) and thinking that I just have "arrested hydrocephalus" which probably will not change with treatment. Stress definitely has a negative effect. There is more I can say, but this is getting long. What are your symptoms, may I ask??


"I posted last week about cognitive issues I've had my whole life - to be honest, I was under the impression that this was rather common for people with hydrocephalus and I was looking forward to hearing how other folks have dealt with it. So far I've had quite a few views and no responses. I'd love to hear from some of you, even if your experiences are very different from mine. Just trying to wrap my head around everything."