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Old 12-27-2011, 10:09 AM
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
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Thanks a lot, everyone. 4-eyes, that really sounds like a good idea, the once a month maintenance thing. I see that what I'm doing--getting really weak and then infusing for five days--seems like a bad idea. In general, medical conditions are harder to treat when they get bad. I will talk to my doctor about it.

I know why my neuro hasn't suggested it yet. I have been on Imuran for nine months. He has been very confident that it will help me, so he's been thinking of the IVIG as something to get me through until it kicks in--a sort of stop-gap measure. He says he has had great success with other MG patients and Imuran. I have been less confident the Imuran will be enough, since I've read so many MG stories here, and I can't think of a single "Imuran-only" success story. But because of the way my life is arranged right now, I can afford to treat this conservatively.

Abby
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