Member
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Join Date: Aug 2009
Posts: 642
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Member
Join Date: Aug 2009
Posts: 642
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Only about half the people I know with MG get by with just pills. Usually it takes a combo of drugs, including IVIG, to keep things controlled. In my case, even that didn't do the trick, so I resorted to the reboot. I still need the meds, but they actually work properly now. So much better.
About the infusion rate: I've been using IVIG for almost 12 years, every 3 weeks! I generally stay on 100 ml/hr, occasionally up to 150, but only when I've drunk a "lakeful" of water before/during/after. My body just can't handle quick infusions.
Good luck.
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