I got 5 days/month for about 2 years, along with mestinon, mestinon timepan, cellcept and prednisone.

I felt somewhat better so I went to 4 days/month, then 3, etc. When I got down to 2/month, it wasn't enough at .4 grams/kg of weight, so my doc switched it to 1.0 grams/kg of weight and moved it to every other week - I've been on that for about a year now.

You and your doc have to figure out what works for you. It's different for each of us, but please don't expect that 5 days in a row will give the same results as you got the first time [
I have never gotten the same great results I got with my first treatment which was 5 days in the hospital. I hope it does give you the same great result, just please don't be disappointed it if doesn't. I think you will eventually reach a combination of treatments that will work for you; it will just take time.

Good luck!

Good luck!